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Disease Atlas / Disease detail

Interstitial cystitis / bladder pain syndrome

An atlas of bladder-associated chronic pain, frequency and urgency, exclusion diagnosis, and phenotype-directed multimodal care.

interstitial cystitis · bladder pain syndrome · IC/BPS

MONDO:0018301Public QA completeSource-bound · 4

Disease at a glance

Start with the essentials, then explore the patient and research views.

Public revision · e9c4bae27368

Disease class
IC/BPS is a chronic bladder-associated pain syndrome.
Core mechanism
Frequency and urgency commonly coexist.
Genes or cause
Symptoms and severity vary substantially.
Typical features
No single cause has been established.
Variability
Hunner lesions define an important phenotype.
Diagnosis
History, examination, and urine testing form the assessment.
Management
Infection, stones, cancer, and other pain causes require exclusion.
Treatment and research
Bladder diaries and symptom scales support monitoring.
Reading evidence
Cystoscopy or urodynamics is selected for complex cases.
Key caution
Education, trigger modification, and bladder training are individualized.

For patients and families

A structured guide for understanding the disease and preparing for clinical conversations.

At a glance

IC/BPS is a chronic bladder-associated pain syndrome.

No single cause has been established.

How the disease works

Frequency and urgency commonly coexist.

Symptoms and severity vary substantially.

Why experiences vary

Hunner lesions define an important phenotype.

Diagnosis and management

History, examination, and urine testing form the assessment.

Treatment status

Infection, stones, cancer, and other pain causes require exclusion.

Bladder diaries and symptom scales support monitoring.

Reading clinical trials

Medicines, instillations, and procedures are response-directed.

Topics for a clinical visit

Hunner lesions, pelvic floor, and treatment burden require review.

Medical notice

This material is for disease education and is not a personal diagnosis or treatment instruction.

Evidence and sources

A trial registry status does not establish efficacy or regulatory approval.